Ongoing support

Down Syndrome Victoria provides support, encouragement, information and resources to families who have a member with Down syndrome. Our Family Support, Adult Support and Education teams are available for 'not so new' parents who may want to talk to someone about a particular issue they may be facing with their child such as skill development, starting school, specific health issues, employment, accommodation.

We are committed to a model of peer support and empowerment to build resilience in people with Down syndrome and their families.

Please get in touch

Whether you're looking for toilet training tips or travel training tips the Family Support Team are here to point you in the right direction. We focus on providing relevant information and resources, problem solving, basic strategies and links to additional services as required.

You can contact us over the phone 1300 658 873 or by email.

Join one of our closed Facebook groups

Social media now offers another way to connect with us and with many other fellow Victorian families.

Our closed groups are open to Victorian parents of children with Down syndrome or those pregnant with a baby with Down syndrome who have decided to continue the pregnancy. We currently have two groups:

Down Syndrome Victoria Parents

Parents of Adults with Down syndrome

Our groups are mediated by DSV Support Staff and were specifically created to encourage peer support, information sharing and to empower families and to create positive expectations of our children and adults. Please feel free to share your fears and joys, highs and lows, current information and news.

We welcome those that are new to the journey, and those that have walked it for years.

Down Syndrome Victoria believes that families have the right to feel supported in their choices no matter which paths they choose. We aim to provide balanced, researched information so that families can make informed decisions about how to best raise their child/ren within the context of their family unit.

Please note: Those wanting to be added to this group will need to be known to the organisation (new families need to have had prior contact with Down Syndrome Victoria).

Limitations of our support

We do not provide a crisis service. For urgent assistance please call:

Parentline on 13 22 89

Lifeline on 13 11 14

Kids Helpline 1800 551 800 (for callers aged 5 – 25 years)

We are unable to provide case management. if your support needs are ongoing please call:

Disability Intake & Response Service 1800 783 783

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