Nutrition, weight management and physical fitness

Nutrition, weight management and physical fitness in people with Down syndrome 
Down Syndrome Victoria (2009) 
A brief introduction to these issues and some common areas of concern. 

Growth Charts for Children with Down syndrome
Centers for Disease Control and Prevention

Weight management 

Weight Management in Down Syndrome

Medlen, Joan E (1996) 'Looking at metabolism' Disability Solutions Vol 1 issue 3 pp 10-11, also at 

Medlen, Joan E (1997) ‘Weight management in Down syndrome: the early childhood years’ Disability Solutions Vol 2 issue 4

Medlen, Joan E (1998) ‘Weight management in Down syndrome: the school age and adolescent years’ Disability Solutions Vol 2 issue 5

Medlen, Joan E (1998) ‘Weight management in Down syndrome: the adult years’ Disability Solutions Vol 2 issue 6

Harrison, Jill (2003) ‘Mark – a story of weight loss and Down syndrome – a mother’s story’ 
DSA Diary, Down Syndrome Association of Western Australia 
A mother’s personal story of supporting her adult son through a process of weight loss and ongoing weight management. 

Disability Solutions Volume 6 issue 2 (summer 2005) focuses on self responsibility in eating habits and weight management for people with Down syndrome 

Baker, Daniel (2005) ‘Whose choice is it? A primer on making informed choices’ Disability Solutions Vol 6 issue 2 
Discusses the issue of informed choice in eating habits. 

Medlen, Joan E (2005) ‘Healthy lives and informed choices. You can have both!’ Disability Solutions Vol 6 issue 2 
Focuses on self determination in weight management – also details the difference between dieting and weight management. 


 Pipes, Peggy (1995) ‘Nutrition and children with Down syndrome’ in Medical and surgical care for children with Down syndrome. A guide for parents Topics in Down Syndrome series, Woodbine House, ch 17 pp 327-344 

Markham, Julie (1999) A nutritional perspective Down Syndrome Guide, Kennedy Krieger Institute 
Short article which outlines a number of the main nutritional considerations in regard to Down syndrome. 

Todd, Jamie (2005) ‘Stephen’s success. A tale of teaching and tenacity’ Disability Solutions Vol 6 issue 2 
Advice for guiding children into healthy eating habits. Includes a template for teaching children to make their own lunches. 

Medlen, Joan (1997) ‘Picky eater? Don’t give up... yet’ Disability Solutions Vol 2 issue 1 
Discusses food jag and texture progression with practical advice and helpful strategies to encourage acceptance of new foods. 

‘Go for your life’ 
Victorian Government website which aims to prom. Lots of advice and ideas.ote healthy eating and increase levels of physical activity 

Sensory processing disorder
This overly commercial site nonetheless has plenty of strategies and advice for supporting picky eaters. 

Reproducible food pyramids and learning activities based on the food pyramid: 

 My food guide pyramid’ in The Down syndrome nutrition handbook. A guide to promoting healthy lifestyles Woodbine House, 2002, pp 281-335 

‘Diet’ and ‘Which food group?’ in Down’s Syndrome Association (UK) Health. Looking after yourself This publication, written by and for adults with Down syndrome, covers a whole range of health matters in plain language and with reproducible revision activities.

Physical fitness 

 Medlen, Joan E (2002) ‘Fitness and activity’ in The Down syndrome nutrition handbook. A guide to promoting healthy lifestyles Woodbine House, ch 14 pp 237-254 
Good basic information relating to encouraging activity in children, including guidelines to help evaluate inclusion in community recreation opportunities. Examples of activity opportunities relate to USA but may suggest local opportunities that can be pursued. 

 Velde, Beth and Claudia Emes (2006) ‘Sport and recreation’ in Recreation and adults with Down syndrome Down Syndrome Issues and Information series, Down Syndrome Educational Trust, pp 19-23 
Information and suggestions for recreational physical activity (particular relation to adults but relevant for parents of younger children too). 

Buckley, Sue (2007) ‘Increasing opportunities for physical activity’ Down Syndrome Research and Practice vol 12, issue 1, Down Syndrome Education International 

Jobling, Anne and Nazamin Virji-Babul (2004) Motor development in Down syndrome: play, move and grow Down Syndrome Research Foundation 
Comprehensive guide to motor development in individuals with Down syndrome including suggestions for recreational play and exercise regimens designed to develop motor development. 

Looking for physical activity and sporting opportunities? - How to find sport and physical activity opportunities in your local area for a person with a disability. 

Joint and muscular

Atlanto-axial instability

Down’s Syndrome Association Medical Series - UK Down’s Syndrome Association
Atlanto-axial instability among people with Down’s syndrome. Notes for parents and carers